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Tag Archives: CBT
Changing Tactics
For decades, ME/CFS research and clinical care has been plagued by disagreement over the basic classification of the illness. Is ME/CFS a physical disease, as many patients and researchers insist? Or is it a mental health disorder perpetuated by deconditioning, … Continue reading
Posted in Commentary
Tagged case definition, CBT, GET, pathogenesis, politics, psychosocial, researchers, speaking out
33 Comments
Systematic Overreaching
A study published last month* by a group from Norway reports a systematic review of ME/CFS case definitions. It’s important because the Institute of Medicine panel is likely conducting a similar process as part of its work, but the study … Continue reading
AAFP Follow Up
After the American Academy of Family Practitioners published an article on CFS in October 2012, Dr. Lucinda Bateman and I submitted a Letter to the Editor. Today, that letter was published and the full version is free online. There is … Continue reading
Posted in Commentary
Tagged AAFP, CBT, coping, exercise, GET, PACE, psychosocial, speaking out
1 Comment
Puzzle Pieces
Let’s play a game. Imagine you have a large puzzle that makes an Impressionist picture of a colorful cottage-style garden. You can put it together as long as you have the picture on the box. First you assemble the lower … Continue reading
Posted in Commentary
Tagged AAFP, biomarkers, case definition, CBT, CDC, coping, exercise, GET, living with, occupy, orthostatic intolerance, pacing, pain, pathogenesis, post-exertional malaise, psychosocial, risk, speaking out, stress, treatment
13 Comments
This. Is. Why.
I’m on the verge of tearing my hair out, and I suspect I’m not the only one. The American Academy of Family Physicians published a review article about CFS (paywall) on Monday, accompanied by a patient information sheet. From the … Continue reading
Posted in Advocacy, Commentary
Tagged biomarkers, case definition, CBT, CDC, CFSAC, CPET, DHHS, exercise, GET, government, orthostatic intolerance, pacing, pain, pathogenesis, politics, post-exertional malaise, psychosocial, risk, speaking out, treatment
30 Comments
NIH Funding and the XMRV Effect
The largest pool of money available for investigator-initiated CFS research grants is the NIH. Although miniscule relative to other areas of research, $6 million a year is the largest annual research investment in CFS from any source. Given the significance … Continue reading
Posted in Research
Tagged CBT, funding, government, NIH, orthostatic intolerance, politics, psychological, researchers, spending, XMRV
14 Comments
CFSAC Profile: Dr. Lisa Corbin
The second in a series of profiles of the new members of the CFS Advisory Committee. Four new members were recently appointed to the CFS Advisory Committee. In previous years, members such as Drs. Jason, Klimas and Snell were well-known … Continue reading
Posted in Advocacy
Tagged case definition, CBT, CDC, CFSAC, doctors, GET, government, politics, profile, researchers, Toolkit
3 Comments
FITNET or Fairy Dust?
There has been much buzz in the CFS community over the latest CBT (cognitive behavioral therapy) study claiming astounding recovery rates in CFS. This time, the study is called FITNET, a test of internet-based CBT for adolescents with CFS in … Continue reading
Posted in Commentary, Research
Tagged CBT, GET, pacing, post-exertional malaise, psychosocial, treatment
5 Comments
Protocol for Disaster?
The study protocol for the systematic review of ME/CFS was posted by the Agency for Healthcare and Research Quality yesterday. It’s a recipe for disaster on its own, and within the broader context of the NIH P2P Workshop it’s even … Continue reading →