Monthly Archives: March 2016

RFA Ticker, 3/28/16

Posted on March 28, 2016 by Jennie Spotila

As I mentioned last week, these numbers apply to NIH issued RFAs only, not FDA or other agency-funded RFAs. Also, I think it might help to review some terminology. “RFA” stands for a Request for Applications. This mechanism sets money … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 11 Comments

RFA Ticker, 3/21/16

Posted on March 21, 2016 by Jennie Spotila

I’ve reexamined the RFA data, and found a total of 12 out of 174 RFAs that are actually being funded by FDA. I’ve removed the dollar figures being set aside by FDA from the weekly and overall totals. I also … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 2 Comments

RFA Ticker, 3/14/16

Posted on March 14, 2016 by Jennie Spotila

During the March 8, 2016 NIH conference call with ME/CFS advocates, I asked Dr. Walter Koroshetz of NINDS if he could commit to the community that an RFA would be forthcoming. He said no, and then qualified the answer by … Continue reading →

Posted in Advocacy, Research | Tagged , , , , , , , , , , , | 27 Comments

RFA Ticker, 3/7/16

Posted on March 7, 2016 by Jennie Spotila

Just one RFA last week, and it wasn’t for ME/CFS. The wait continues. Total RFAs Issued by NIH: 150 (October 2015 to date) Total Dollars Committed to RFAs: $1,612,990,000 (October 2015 to date) Total RFAs for ME/CFS: ZERO (October 2015 … Continue reading →

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We Are All Noncompliant

Posted on March 2, 2016 by Jennie Spotila

I learned something about ME/CFS advocacy from a comic book. Now wait, stay with me. I realize this sounds bizarre, especially coming from me. I haven’t read a comic book since I was eight years old. Enter Bitch Planet, a … Continue reading →

Posted in Advocacy, Commentary | Tagged , , , , , , , , , , , , , , , , , , , | 20 Comments