I am Jennie Spotila, and I fell ill with Myalgic Encephalomyelitis on October 6, 1994. I am disabled, and mostly housebound, but I have been active in writing about ME/CFS and advocating for more research funding since the late 1990s. I served on the Board of Directors of The CFIDS Association of America (now the Solve ME/CFS Initiative) from 2006 to 2011, and served as Chairman in 2008 and 2009. I have testified before the CFS Advisory Committee on multiple occasions, and I have given many media interviews about the illness. Occupy ME is a blog about the politics, research, medicine, and personal experience of life with ME. All the opinions expressed here (unless otherwise noted) are my own.
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