Tag Archives: XMRV

Answering Attacks

When I posted about the “truthiness” I saw in a comment by Dr. Mikovits, I expected criticism. I’ve heard from folks in the comments, on Twitter and Facebook, and by email. I think some of the points and questions raised … Continue reading

Posted in Commentary | Tagged , , , , | 13 Comments

Facts, Not Spin

I need to speak out about something, in part because I’m afraid no one else will. I’ve been following the comments posted in the FDA docket on ME/CFS, and I came across this comment from Dr. Judy Mikovits: During the … Continue reading

Posted in Commentary | Tagged , , , , , | 12 Comments

Mental Illness Meme

When it comes to press coverage of CFS and XMRV, there is a pervasive mental illness meme that must be addressed. It goes something like this: XMRV/viruses do not cause ME/CFS. Therefore, it could be a mental illness. Patients strongly … Continue reading

Posted in Commentary | Tagged , , , , , , , , , , | 21 Comments

Those Lipkin Samples

You may recall from my post on the Lipkin study that Dr. Lipkin talked about the sample cohort at the press conference on September 18th. Dr. Lipkin said that the samples would be available for other investigators and that applications … Continue reading

Posted in Research | Tagged , , , , , , , , , , , | 4 Comments

Stick a Fork In It

After three years of controversy about the purported association between CFS and XMRV, and after two years of waiting for the definitive Lipkin study to be finished (full text of the paper is here), we have our answer. Stick a … Continue reading

Posted in Commentary, Research | Tagged , , , , , , , , , , , , | 13 Comments

The News on XMRV

I am going to refrain from any comment on the XMRV study results announced today until I have had a chance to read the paper, listen to the press conference, and think about the whole thing for a few hours. … Continue reading

Posted in Research | Tagged , , , , , , , , , | 3 Comments

Passing of Dr. William Reeves

Unexpected news came today that Dr. William Reeves passed away last night. Dr. Reeves was head of the CDC’s CFS program from 1992 through 2010, and was a polarizing figure both inside and outside the agency. Others have chronicled the … Continue reading

Posted in Commentary | Tagged , , , , , , , | 24 Comments

NIH Funding and the XMRV Effect

The largest pool of money available for investigator-initiated CFS research grants is the NIH. Although miniscule relative to other areas of research, $6 million a year is the largest annual research investment in CFS from any source. Given the significance … Continue reading

Posted in Research | Tagged , , , , , , , , , | 14 Comments

2011 NIH Spending on CFS Studies

At the June 2012 CFS Advisory Committee meeting, Dr. Susan Maier from the NIH Office of Research on Women’s Health reported that NIH funding of CFS research in 2011 totaled $6.3 million. In the past, advocates have questioned whether studies … Continue reading

Posted in Research | Tagged , , , , , , , , , , , , , | 3 Comments

XMRumorsV

Rumors about the Lipkin study are flying fast and furious these days. We’ve been hearing for months that the study results would be made public this year, but “news” of specific dates has kicked things into a frenzy. In April, … Continue reading

Posted in Research | Tagged , , , , , , | 7 Comments