Tag Archives: spending

The Cut

Trump’s proposed budget is out. Among all the cuts – because you have to cut in order to increase defense spending while simultaneously giving the rich a tax cut – among all these cuts is one that people with ME … Continue reading

Posted in Advocacy, Commentary, Research | Tagged , , , , , , , , , , , , , , , | 10 Comments

RFA Ticker, 2/20/17

Following an excellent suggestion from J.A. on last week’s post, I have added a line to the table of cumulative RFA numbers. This line will track the RFA dollars committed to ME/CFS. I don’t expect it to change this year. … Continue reading

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , | Comments Off on RFA Ticker, 2/20/17

RFA Ticker, 2/13/17

NIH issued one RFA last week, for cellular therapies to treat radiation injuries. In that one RFA, the National Institute of Allergy and Infectious Diseases committed $4 million for FY 2018. The maximum project length is five years, although future … Continue reading

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , | 4 Comments

RFA Ticker, 2/6/17

I have no words this week, friends. I’m tracking the numbers because that is all I can do. One announcement: The NIH Clinical Care Center study of post-infectious ME/CFS is now recruiting participants. You can see the flyer here, and … Continue reading

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , , | 13 Comments

RFA Ticker, 1/30/17

At long last, the promised RFAs are here. Last week NIH published the RFA for the Collaborative Research Centers and the Data Management and Coordinating Center. Unfortunately, my mother-in-law passed away last week. Between that and other sources of upheaval, … Continue reading

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , | 12 Comments

RFA Ticker, 1/23/17

Second verse same as the first. The wait continues. Two dates are coming: January 31st, by which Dr. Francis Collins said the RFAs would be issued. February 1st, on which NIH will hold another ME/CFS advocacy call. Call-in information has … Continue reading

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , , | 8 Comments

RFA Ticker, 1/16/17

NIH issued no RFAs last week, but we have plenty to talk about after Dr. Vicky Whittemore’s presentation at the CFS Advisory Committee on Friday. Dr. Whittemore’s announcement was simultaneously welcome and disappointing. During her update to the committee on … Continue reading

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , , , , , , | 15 Comments

Comment by Terri Wilder, 1/12/17

Terri Wilder made these remarks at the January 12, 2017 meeting of the CFS Advisory Committee. I’m pleased to publish her complete comments, with her permission. Good Afternoon- My name is Terri Wilder and I’m a person living with ME. … Continue reading

Posted in Advocacy | Tagged , , , , , , , , , , , , , , , , , , , , | 26 Comments

RFA Ticker, 1/9/17

So. Is anyone surprised that it is January 9th and we do not have the promised RFAs? I didn’t think so. Will we hear an announcement at the CFS Advisory Committee meeting this week? I don’t know. The question that … Continue reading

Posted in Advocacy, Research | Tagged , , , , , , , , , , , , , | 32 Comments

Zero, Zilch, Zippo

Zero, zilch, zippo, nada, cero, null, nulla, sifr, nul’, ling, nialas, sero, naught. No matter how you say it, we got nothing. Despite the promise in October 2015 that a request for proposals would be issued “soon.” Despite Dr. Collins’s … Continue reading

Posted in Advocacy, Commentary, Research | Tagged , , , , , , , , , , , , , , | 15 Comments