Subscribe to Blog via Email
Pages
-
Recent Posts
Recent Comments
- Jennie Spotila on How To Stay At Home
- Chelle on How To Stay At Home
- Val Hainer on How You Doin’?
- Kathy D. on How You Doin’?
- Trevor Bond on How You Doin’?
Archives
- July 2020
- June 2020
- April 2020
- March 2020
- February 2020
- January 2020
- November 2019
- August 2019
- June 2019
- May 2019
- April 2019
- March 2019
- February 2019
- January 2019
- November 2018
- October 2018
- September 2018
- August 2018
- July 2018
- June 2018
- May 2018
- April 2018
- March 2018
- February 2018
- January 2018
- December 2017
- November 2017
- October 2017
- September 2017
- August 2017
- July 2017
- June 2017
- May 2017
- April 2017
- March 2017
- February 2017
- January 2017
- December 2016
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- February 2016
- January 2016
- December 2015
- November 2015
- October 2015
- August 2015
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- February 2015
- January 2015
- December 2014
- November 2014
- October 2014
- September 2014
- August 2014
- July 2014
- June 2014
- May 2014
- April 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- October 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- August 2012
- July 2012
- June 2012
- May 2012
- April 2012
- March 2012
- February 2012
Meta
Tags
- accountability
- action
- anaerobic
- biomarkers
- case definition
- CBT
- CDC
- CFIDS Association
- CFSAC
- coping
- CPET
- DHHS
- disability
- drugs
- exercise
- family
- FDA
- funding
- GET
- government
- grants
- IOM
- living with
- Millions Missing
- NIH
- occupy
- orthostatic intolerance
- P2P
- pacing
- pain
- pathogenesis
- politics
- post-exertional malaise
- priorities
- psychosocial
- recommendations
- researchers
- RFA
- RFA Ticker
- speaking out
- spending
- stress
- suffering
- testimony
- treatment
Tag Archives: psychosocial
Guest Post: Slightly Snarky
Joe Landson authors this guest post on the chasm between patient experiences and the people who need to understand them. We suffer through many devastating symptoms, but today I’m only thinking of one. It’s perhaps the most devastating effect of … Continue reading
Posted in Commentary
Tagged coping, drugs, government, guest post, politics, psychosocial, speaking out, treatment
5 Comments
The Oxford Problem
Today, I’m very pleased to share this guest post by Chris Heppner. I loved Oxford when there as undergraduate (1951-4)–truly a city of dreaming spires, peaceful libraries, walks in the country to a lovely old pub by a waterfall with … Continue reading
Posted in Commentary, Research
Tagged AHRQ, case definition, CBT, GET, government, NIH, occupy, Oxford, P2P, politics, post-exertional malaise, psychosocial, speaking out
10 Comments
P2P Agenda: What the Huh?
Less than six weeks from the NIH P2P Workshop on ME/CFS, and we now have an agenda with speakers and talk titles. So is it good or bad? I reached out to the six ME/CFS members of the Working Groups … Continue reading
Posted in Advocacy, Research
Tagged case definition, DHHS, GET, government, NIH, P2P, politics, psychosocial, recommendations, researchers, speaking out
49 Comments
Illness Beliefs (or Why I Am Not an ME/CFS Activist)
Today, Joe Landson shares his thoughts on how the false illness beliefs (or even cognitive bias) among scientists is holding our field back. Joe says it is time to tear down the walls and think horizontally – to the horizon, … Continue reading
Posted in Commentary
Tagged case definition, guest post, NIH, pathogenesis, priorities, psychosocial, researchers, speaking out
9 Comments
Draft Systematic Review is UP
The draft systematic evidence review on the Diagnosis and Treatment of ME/CFS has been published. This review is extraordinarily important because it is being presented to the P2P Panel in a closed door session any day now. This review will … Continue reading
Posted in Advocacy
Tagged action, biomarkers, case definition, CBT, CPET, DHHS, drugs, exercise, GET, government, NIH, occupy, orthostatic intolerance, P2P, pacing, pain, politics, post-exertional malaise, priorities, psychosocial, recommendations, researchers, speaking out, stress, treatment
7 Comments
Reading Tea Leaves
In a report issued on March 12, the IOM panel tasked with creating a new case definition for Gulf War Illness declined to do so. This is the first time the IOM was attempting to create a disease case definition, … Continue reading
Posted in Advocacy
Tagged case definition, IOM, IOM panel, politics, post-exertional malaise, psychosocial, recommendations, researchers, speaking out
4 Comments
Changing Tactics
For decades, ME/CFS research and clinical care has been plagued by disagreement over the basic classification of the illness. Is ME/CFS a physical disease, as many patients and researchers insist? Or is it a mental health disorder perpetuated by deconditioning, … Continue reading
Posted in Commentary
Tagged case definition, CBT, GET, pathogenesis, politics, psychosocial, researchers, speaking out
33 Comments
Vincent Departs
Eagle-eyed Tom Kindlon posted on Twitter last night that Dr. Ann Vincent’s name has been removed from the CFS Advisory Committee roster. It appears that Dr. Vincent has resigned, although I have no information on when or why she may … Continue reading
Posted in Advocacy
Tagged CFSAC, DHHS, government, politics, profile, psychosocial, researchers, speaking out
14 Comments
IOM: The Big Day
On February 10th, the Institute of Medicine committee will release its report Beyond ME/CFS: Redefining an Illness. The release event will be webcast at 11am Eastern. The report contents are under embargo until the release, although rumors are flying about … Continue reading →