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Tag Archives: psychosocial
Guest Post: Slightly Snarky
Joe Landson authors this guest post on the chasm between patient experiences and the people who need to understand them. We suffer through many devastating symptoms, but today I’m only thinking of one. It’s perhaps the most devastating effect of … Continue reading
Posted in Commentary
Tagged coping, drugs, government, guest post, politics, psychosocial, speaking out, treatment
5 Comments
The Oxford Problem
Today, I’m very pleased to share this guest post by Chris Heppner. I loved Oxford when there as undergraduate (1951-4)–truly a city of dreaming spires, peaceful libraries, walks in the country to a lovely old pub by a waterfall with … Continue reading
Posted in Commentary, Research
Tagged AHRQ, case definition, CBT, GET, government, NIH, occupy, Oxford, P2P, politics, post-exertional malaise, psychosocial, speaking out
10 Comments
P2P Agenda: What the Huh?
Less than six weeks from the NIH P2P Workshop on ME/CFS, and we now have an agenda with speakers and talk titles. So is it good or bad? I reached out to the six ME/CFS members of the Working Groups … Continue reading
Posted in Advocacy, Research
Tagged case definition, DHHS, GET, government, NIH, P2P, politics, psychosocial, recommendations, researchers, speaking out
49 Comments
Illness Beliefs (or Why I Am Not an ME/CFS Activist)
Today, Joe Landson shares his thoughts on how the false illness beliefs (or even cognitive bias) among scientists is holding our field back. Joe says it is time to tear down the walls and think horizontally – to the horizon, … Continue reading
Posted in Commentary
Tagged case definition, guest post, NIH, pathogenesis, priorities, psychosocial, researchers, speaking out
9 Comments
Draft Systematic Review is UP
The draft systematic evidence review on the Diagnosis and Treatment of ME/CFS has been published. This review is extraordinarily important because it is being presented to the P2P Panel in a closed door session any day now. This review will … Continue reading
Posted in Advocacy
Tagged action, biomarkers, case definition, CBT, CPET, DHHS, drugs, exercise, GET, government, NIH, occupy, orthostatic intolerance, P2P, pacing, pain, politics, post-exertional malaise, priorities, psychosocial, recommendations, researchers, speaking out, stress, treatment
7 Comments
Reading Tea Leaves
In a report issued on March 12, the IOM panel tasked with creating a new case definition for Gulf War Illness declined to do so. This is the first time the IOM was attempting to create a disease case definition, … Continue reading
Posted in Advocacy
Tagged case definition, IOM, IOM panel, politics, post-exertional malaise, psychosocial, recommendations, researchers, speaking out
4 Comments
Changing Tactics
For decades, ME/CFS research and clinical care has been plagued by disagreement over the basic classification of the illness. Is ME/CFS a physical disease, as many patients and researchers insist? Or is it a mental health disorder perpetuated by deconditioning, … Continue reading
Posted in Commentary
Tagged case definition, CBT, GET, pathogenesis, politics, psychosocial, researchers, speaking out
33 Comments
Vincent Departs
Eagle-eyed Tom Kindlon posted on Twitter last night that Dr. Ann Vincent’s name has been removed from the CFS Advisory Committee roster. It appears that Dr. Vincent has resigned, although I have no information on when or why she may … Continue reading
Posted in Advocacy
Tagged CFSAC, DHHS, government, politics, profile, psychosocial, researchers, speaking out
14 Comments
IOM: The Big Day
On February 10th, the Institute of Medicine committee will release its report Beyond ME/CFS: Redefining an Illness. The release event will be webcast at 11am Eastern. The report contents are under embargo until the release, although rumors are flying about … Continue reading →