Subscribe to Blog via Email
Pages
-
Recent Posts
Recent Comments
- billie moore on CDC Website Update
- Anil van der Zee on CDC Website Update
- Mary D on CDC Website Update
- Mary D on CDC Website Update
- Mary D on CDC Website Update
Archives
- September 2017
- August 2017
- July 2017
- June 2017
- May 2017
- April 2017
- March 2017
- February 2017
- January 2017
- December 2016
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- February 2016
- January 2016
- December 2015
- November 2015
- October 2015
- August 2015
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- February 2015
- January 2015
- December 2014
- November 2014
- October 2014
- September 2014
- August 2014
- July 2014
- June 2014
- May 2014
- April 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- October 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- August 2012
- July 2012
- June 2012
- May 2012
- April 2012
- March 2012
- February 2012
Meta
Tags
accountability action AHRQ anaerobic biomarkers case definition CBT CDC CFIDS Association CFSAC coping CPET DHHS drugs exercise FDA funding GET government grants heart rate monitor IOM living with NIH occupy orthostatic intolerance P2P pacing pain pathogenesis politics post-exertional malaise priorities profile psychosocial recommendations researchers RFA RFA Ticker speaking out spending stress suffering testimony treatment
Tag Archives: politics
RFA Ticker, 2/20/17
Following an excellent suggestion from J.A. on last week’s post, I have added a line to the table of cumulative RFA numbers. This line will track the RFA dollars committed to ME/CFS. I don’t expect it to change this year. … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, researchers, RFA, RFA Ticker, speaking out, spending
Comments Off on RFA Ticker, 2/20/17
RFA Ticker, 2/13/17
NIH issued one RFA last week, for cellular therapies to treat radiation injuries. In that one RFA, the National Institute of Allergy and Infectious Diseases committed $4 million for FY 2018. The maximum project length is five years, although future … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, researchers, RFA, RFA Ticker, speaking out, spending
4 Comments
RFA Ticker, 2/6/17
I have no words this week, friends. I’m tracking the numbers because that is all I can do. One announcement: The NIH Clinical Care Center study of post-infectious ME/CFS is now recruiting participants. You can see the flyer here, and … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
13 Comments
RFA Ticker, 1/30/17
At long last, the promised RFAs are here. Last week NIH published the RFA for the Collaborative Research Centers and the Data Management and Coordinating Center. Unfortunately, my mother-in-law passed away last week. Between that and other sources of upheaval, … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, researchers, RFA, RFA Ticker, speaking out, spending
12 Comments
RFA Ticker, 1/23/17
Second verse same as the first. The wait continues. Two dates are coming: January 31st, by which Dr. Francis Collins said the RFAs would be issued. February 1st, on which NIH will hold another ME/CFS advocacy call. Call-in information has … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, researchers, RFA, RFA Ticker, speaking out, spending, treatment
8 Comments
RFA Ticker, 1/16/17
NIH issued no RFAs last week, but we have plenty to talk about after Dr. Vicky Whittemore’s presentation at the CFS Advisory Committee on Friday. Dr. Whittemore’s announcement was simultaneously welcome and disappointing. During her update to the committee on … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, biomarkers, CFSAC, DHHS, funding, government, grants, NIH, politics, post-exertional malaise, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
15 Comments
Comment by Terri Wilder, 1/12/17
Terri Wilder made these remarks at the January 12, 2017 meeting of the CFS Advisory Committee. I’m pleased to publish her complete comments, with her permission. Good Afternoon- My name is Terri Wilder and I’m a person living with ME. … Continue reading
Posted in Advocacy
Tagged accountability, action, CDC, CFSAC, DHHS, exercise, fierce, funding, GET, government, grants, living with, NIH, occupy, politics, priorities, recommendations, speaking out, spending, testimony, treatment
26 Comments
RFA Ticker, 1/9/17
So. Is anyone surprised that it is January 9th and we do not have the promised RFAs? I didn’t think so. Will we hear an announcement at the CFS Advisory Committee meeting this week? I don’t know. The question that … Continue reading
Posted in Advocacy, Research
Tagged accountability, action, funding, government, grants, NIH, politics, priorities, recommendations, researchers, RFA, RFA Ticker, speaking out, spending
32 Comments
CFSAC Public Comment, January 2017
I prepared comments for the January 13, 2017 CFS Advisory Committee meeting, but when my time arrived I decided to wing it. Below is my best reconstruction of what I said, a mixture of my prepared and spontaneous remarks. Start … Continue reading →