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Tag Archives: patient
Talk To FDA About Chronic Pain
The FDA wants to hear from people with chronic pain, and is hosting a meeting on July 9, 2018 to collect public input. I have chronic pain, and I know that many of you do as well. This meeting is … Continue reading
Posted in Advocacy
Tagged action, coping, drugs, FDA, government, living with, occupy, pain, pain management, patient, patients, PFDD, speaking out, suffering, testimony, treatment
5 Comments
Doing Patient Engagement
One of my passions is engaging people with ME in research, and especially as more than just subjects of the research. That’s why I co-authored a report on best practices in patient engagement. As the NIH-funded Collaborative Research Centers kick … Continue reading
Posted in Advocacy, Research
Tagged action, collaboration, engagement, funding, government, grants, NIH, participation, partnership, patient, patients, researchers, RFA
7 Comments