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Tag Archives: loss
One Dance: Millions Missing 2018
I was never a talented dancer, but I loved it. I quit ballet lessons when I was in the 3rd grade because it was hard. I struggled to learn the simple choreography in school musical productions. I never learned to … Continue reading →
Posted in Advocacy, Occupying
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Tagged accountability, action, activism, anniversary, coping, family, funding, government, grants, grief, living with, loss, medical education, Millions Missing, NIH, occupy, politics, post-exertional malaise, priorities, speaking out, spending, suffering, treatment
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23 Comments
Unrest: Movie Review
Spoiler alert: This review discusses some specific scenes from Unrest. Edited to add: No, really! There are SPOILERS here! If you want to see and experience the film with a blank slate, then go see the film and come back … Continue reading →
Posted in Commentary, Occupying
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Tagged activism, advocacy, coping, family, film, gratitude, grief, living with, loss, love, Millions Missing, movie, occupy, orthostatic intolerance, pacing, pain, post-exertional malaise, review, speaking out, suffering, testimony, treatment, unrest
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15 Comments
Guest Post: Sickaversary
My friend, Jenny R, wrote these profound words about her sickaversary. 10 years and 4 days ago today I got sick and never got better. I wrote this to commemorate it: I want to write something incredibly profound and moving … Continue reading →
Posted in Occupying
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Tagged coping, grief, living with, loss, occupy, sickaversary, speaking out, stress, suffering
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6 Comments
Still #MillionsMissing
Today is another, larger #MillionsMissing protest, and I am missing it. I miss a lot of things. One of the best things I ever did in my life was to drive cross country, camping in national parks. It changed my … Continue reading →
Posted in Advocacy, Occupying
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Tagged accountability, action, biomarkers, coping, drugs, funding, government, grants, living with, loss, Millions Missing, NIH, occupy, politics, speaking out, spending, suffering, treatment
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14 Comments
“Take Care Of Each Other”
“Take care of each other.” Those were the closing words in Anne Ortegren’s suicide letter. Anne’s death came as a shock to many of us, myself included. Anne was a friend and long-time supporter of my work. She made a … Continue reading →