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Tag Archives: loss
#MillionsMissing 2019
We are the disappeared The vanished The millions missing Blink Snap your fingers Gone Do you miss us? Does anyone ask what happened to us? Does it cross your mind that we are still very much alive? We think of … Continue reading →
Posted in Advocacy, Occupying
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Tagged accountability, disability, living with, loss, Millions Missing, politics, protest, speaking out, suffering
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16 Comments
The Best Holiday Ever
Getting a puppy was not in the plan. My husband and I already had a dog (Fargo) and a cat (Lucas). The plan was for my parents to pick out a dog, and I just went along to help since … Continue reading →
Posted in Occupying
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Tagged adapting, coping, disability, dog, doggo, family, grief, joy, life, living with, loss, love, personal, pets, pupper, shining light, strength
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20 Comments
One Dance: Millions Missing 2018
I was never a talented dancer, but I loved it. I quit ballet lessons when I was in the 3rd grade because it was hard. I struggled to learn the simple choreography in school musical productions. I never learned to … Continue reading →
Posted in Advocacy, Occupying
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Tagged accountability, action, activism, anniversary, coping, family, funding, government, grants, grief, living with, loss, medical education, Millions Missing, NIH, occupy, politics, post-exertional malaise, priorities, speaking out, spending, suffering, treatment
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23 Comments
Unrest: Movie Review
Spoiler alert: This review discusses some specific scenes from Unrest. Edited to add: No, really! There are SPOILERS here! If you want to see and experience the film with a blank slate, then go see the film and come back … Continue reading →
Posted in Commentary, Occupying
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Tagged activism, advocacy, coping, family, film, gratitude, grief, living with, loss, love, Millions Missing, movie, occupy, orthostatic intolerance, pacing, pain, post-exertional malaise, review, speaking out, suffering, testimony, treatment, unrest
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15 Comments
Guest Post: Sickaversary
My friend, Jenny R, wrote these profound words about her sickaversary. 10 years and 4 days ago today I got sick and never got better. I wrote this to commemorate it: I want to write something incredibly profound and moving … Continue reading →
Posted in Occupying
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Tagged coping, grief, living with, loss, occupy, speaking out, stress, suffering
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6 Comments
Still #MillionsMissing
Today is another, larger #MillionsMissing protest, and I am missing it. I miss a lot of things. One of the best things I ever did in my life was to drive cross country, camping in national parks. It changed my … Continue reading →
Posted in Advocacy, Occupying
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Tagged accountability, action, biomarkers, coping, drugs, funding, government, grants, living with, loss, Millions Missing, NIH, occupy, politics, speaking out, spending, suffering, treatment
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14 Comments
“Take Care Of Each Other”
“Take care of each other.” Those were the closing words in Anne Ortegren’s suicide letter. Anne’s death came as a shock to many of us, myself included. Anne was a friend and long-time supporter of my work. She made a … Continue reading →