Tag Archives: Long COVID

Ed Yong Made Me Cry

There I was, reading Ed Yong’s latest newsletter, and wondering if I had the energy to go downstairs for a cup of coffee. Near the end, Yong listed his upcoming appearances along with an invitation: Come say hi; please wear … Continue reading

Posted in Commentary | Tagged , , , , , , , , | 8 Comments

New York Magazine Article Biased and Riddled with Errors

Today I sent the following email to the Editor of New York Magazine: As a reader of New York Magazine, I have come to expect your articles to be accurate, well-researched, and fair. Unfortunately your recent piece, “Has Long COVID … Continue reading

Posted in Commentary | Tagged , , , , , , , , , , | 33 Comments

In The World

I have spent more time in public in the last month than I have in two-and-a-half years. We were having some work done on the house, and I could not stay there in the midst of the noise, dust, and … Continue reading

Posted in Commentary, Occupying | Tagged , , , , , , , | 18 Comments

A Million More, and Counting

Today is #MillionsMissing, a worldwide day of protest and awareness for the millions of people missing from their lives due to ME. We raise our voices on behalf of our own community, and also on behalf of our compatriots with … Continue reading

Posted in Advocacy | Tagged , , , , , , , , , , , , , , , | 13 Comments

Pandemic Low

I hit a new pandemic low last week. CDC Director Walensky’s comments about the “encouraging” news that most vaccinated people dying of COVID had multiple comorbidities was the catalyst (see my op ed in the Philadelphia Inquirer), but my despair … Continue reading

Posted in Commentary | Tagged , , , , , , , , , , | 15 Comments

The Coding Problem: Why No American Can Develop ME/CFS, Including After COVID

Guest post by Mary Dimmock Please sign this petition to fix the coding problem making Americans with ME/CFS invisible. If a tree falls in the forest, does it make a sound? And if an American develops ME/CFS, would the US … Continue reading

Posted in Advocacy | Tagged , , , , | 19 Comments

David Tuller: Crowdfunding for Us All

I have supported David Tuller’s investigative journalism since he first began his crowdfunding campaigns,* but it has never been more important than right now. I urge you to join me in supporting his current fundraiser not only for yourself, but … Continue reading

Posted in Advocacy, Commentary | Tagged , , , , , , , , , , , , , , , , , , | 1 Comment