Tag Archives: education

Pediatric Primer Not For Prime Time

Guest post by Denise Lopez-Majano Young people with ME face huge difficulty in finding knowledgeable healthcare providers because there is only one full-time pediatric ME specialist in the United States, and he is unable to take on any more patients. … Continue reading

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CFSAC Public Comment, January 2017

I prepared comments for the January 13, 2017 CFS Advisory Committee meeting, but when my time arrived I decided to wing it. Below is my best reconstruction of what I said, a mixture of my prepared and spontaneous remarks. Start … Continue reading

Posted in Advocacy, Commentary | Tagged , , , , , , , , , , , , , , , , , , , , , | 20 Comments

Twitter Chat

I will be guest hosting a WEGO Health Twitter chat on Tuesday, June 10th from 3 to 4pm Eastern time. I chose the topic of advocating for yourself when you have a stigmatized chronic disease. What’s a Twitter chat? Twitter … Continue reading

Posted in Advocacy | Tagged , , , , | 6 Comments