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Tag Archives: disability
#MillionsMissing 2017
Posted in Advocacy
Tagged disability, living with, May 12th blog bomb, Millions Missing, occupy, protest
Comments Off on #MillionsMissing 2017
Preconditions, Burdens and Ableism
Who are we, as people with ME? Are we “patients”? Are we defined by the disease and its impact on our lives? Which comes first: me or ME? This is a question of identity, and how language can bestow or … Continue reading
Posted in Commentary
Tagged ableism, Denver Principles, disability, health care, identity, language, living with, occupy, politics, protest, respect, speaking out
18 Comments
Long Term Disability Insurance/ERISA
If you are fortunate, then your employer provides you with disability insurance. When you become disabled, this insurance pays you a percentage of your salary, and you are not solely dependent on Social Security Disability. In real life, it is … Continue reading
Posted in Advocacy
Tagged action, disability, ERISA, government, public comment, speaking out
Comments Off on Long Term Disability Insurance/ERISA
Two Is Better Than One
My confidence in two-day cardiopulmonary exercise testing (CPET) is pretty obvious on this blog. A new study from ME/CFS experts Dr. Chris Snell, Staci Stevens, Dr. Todd Davenport, and Dr. Mark VanNess supplies hard data that shows how important a … Continue reading
Posted in Research
Tagged anaerobic, biomarkers, CPET, disability, exercise, pacing, post-exertional malaise, researchers
10 Comments
I Heard the News Today, Oh Boy
What is there to say about something like the Boston Marathon bombing? There is no sane way to reconcile the gruesome images, the suffering and destruction with our need to believe that we are safe. We are privileged enough in … Continue reading
Book Review: Growing Gills
I usually focus my book reviews on titles that are directly related to ME, but I’m making an exception today because I want to tell you about Growing Gills by Jessica Abel. This book is about creativity, not disease, but … Continue reading →