Tag Archives: disability

Ed Yong Made Me Cry

There I was, reading Ed Yong’s latest newsletter, and wondering if I had the energy to go downstairs for a cup of coffee. Near the end, Yong listed his upcoming appearances along with an invitation: Come say hi; please wear … Continue reading

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Lightning Book Review: Crip Up The Kitchen

I’ve loved to cook since I was a kid. I wanted to grow up to throw fancy dinner parties like my aunt, complete with appetizers and an elaborate dessert. And I did give some pretty awesome dinner parties, with menus … Continue reading

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In The World

I have spent more time in public in the last month than I have in two-and-a-half years. We were having some work done on the house, and I could not stay there in the midst of the noise, dust, and … Continue reading

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A Million More, and Counting

Today is #MillionsMissing, a worldwide day of protest and awareness for the millions of people missing from their lives due to ME. We raise our voices on behalf of our own community, and also on behalf of our compatriots with … Continue reading

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Pandemic Low

I hit a new pandemic low last week. CDC Director Walensky’s comments about the “encouraging” news that most vaccinated people dying of COVID had multiple comorbidities was the catalyst (see my op ed in the Philadelphia Inquirer), but my despair … Continue reading

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#MillionsMissing Book Review: A Still Life

Today is #MillionsMissing, a day to raise awareness and make people with ME visible to the world. As part of the event, people with ME are sharing their stories on social media but instead of sharing mine I’m going to … Continue reading

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I Want To Scream

I feel like screaming a lot these days. I’ve been following distancing/isolation guidelines for 217 days and counting, and it’s hard. Reading the news usually leads to doomscrolling on social media. Honestly, there are so many distressing and maddening things … Continue reading

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How Pandemic Response Measures Harm People With Disabilities

The coronavirus pandemic is reshaping all our lives. With more than six million confirmed infections in the United States, we are living through a seismic cultural event impacting how we work, learn, socialize, and function. For people with disabilities, like … Continue reading

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A New Year (With Cake)

In the last weeks of 2019, social media was full of people talking about their accomplishments of the last decade, or what they were most proud of, or the biggest changes they made. These posts made me feel terrible. What … Continue reading

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#MillionsMissing 2019

We are the disappeared The vanished The millions missing Blink Snap your fingers Gone Do you miss us? Does anyone ask what happened to us? Does it cross your mind that we are still very much alive? We think of … Continue reading

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