Tag Archives: CPET

Insufficient Data

One of the most frustrating aspects of coping with CFS is the lack of definitive data. A PubMed search for “chronic fatigue syndrome” yields 4,877 results (as of today), but as a patient on the front lines I have to … Continue reading

Posted in Occupying | Tagged , , , , , , , , , , , , , , , | 21 Comments

Rest Medicine

I have been working really hard at resting. That probably doesn’t make sense, but I have been struggling to incorporate preemptive rest into my routine and it feels like a lot of work. The rationale for preemptive rest is that … Continue reading

Posted in Occupying | Tagged , , , , , , , , , , , | 6 Comments

This. Is. Why.

I’m on the verge of tearing my hair out, and I suspect I’m not the only one. The American Academy of Family Physicians published a review article about CFS (paywall) on Monday, accompanied by a patient information sheet. From the … Continue reading

Posted in Advocacy, Commentary | Tagged , , , , , , , , , , , , , , , , , , , | 30 Comments

Imperfect

I’ve had a craptastic week. Three crash days, including one that involved a three hour “nap.” I don’t understand what triggered these crash days, but I never do. Usually, crash days take me by surprise because whatever activity I’ve been … Continue reading

Posted in Occupying | Tagged , , , , , , , , , , | 11 Comments

Adapting

I remember my mother and grandmother canning every year. My grandmother would put up jars of peach halves and applesauce, and my mother made strawberry jam. It always seemed like a silly waste of time to me, since you can … Continue reading

Posted in Occupying | Tagged , , , , , , , , , , | 3 Comments

Preemptive Rest

I continue to wear my heart rate monitor every day, and generally listen to its alarm.  When it starts to sound, I sit down (although not instantaneously I will admit). And when I hit the part of the day where … Continue reading

Posted in Occupying | Tagged , , , , , , , , | 12 Comments

Spontaneity

I’ve always been a planner, and living with CFS wreaks havoc on plans. I never know if I’ll be able to follow through on plans, big or small. I missed my cousin’s high school graduation, and at least three weddings … Continue reading

Posted in Occupying | Tagged , , , , , , , , | 2 Comments

Can’t Drive 95

Almost as soon as I had decided to raise the limit on my heart rate monitor to 105 beats per minute, my physical therapy team smacked that idea down. They told me that one week with the monitor was not … Continue reading

Posted in Occupying | Tagged , , , , , , , , , , , | 26 Comments

Raising the Limit

I feel like I am getting close to baseline, the state I was in prior to the exercise testing. It’s taken almost seven weeks, and in that time I have left my house a total of seven times – 5 … Continue reading

Posted in Occupying | Tagged , , , , , , , , , , , | 9 Comments

Significance of AT

Now that my exercise tests are finished and I have the results, it’s time to figure out what to do about it. I’m relying on the work of Staci Stevens, Chris Snell and others at the Pacific Fatigue Lab who … Continue reading

Posted in Occupying | Tagged , , , , , , , , | 3 Comments