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Tag Archives: CDC
CDC Website Update
In this guest post, Mary Dimmock summarizes the latest updates to CDC’s ME/CFS website. In early July, the Centers for Disease Control and Prevention (CDC) replaced its website for myalgic encephalomyelitis (ME), previously called chronic fatigue syndrome (CFS) and now … Continue reading
Posted in Advocacy, Commentary
Tagged accountability, case definition, CBT, CDC, CFSAC, DHHS, exercise, fatigue, GET, government, guest post, IOM, medical education, PACE, pacing, politics, post-exertional malaise, recommendations, speaking out, treatment
34 Comments
Those CDC Documents
Last month, I wrote about CDC wanting to charge me over $200 for documents I had requested under the Freedom of Information Act. I was looking for information on how much CDC had spent on the Institute of Medicine (now … Continue reading
Posted in Advocacy
Tagged accountability, AHRQ, case definition, CDC, CMS, contract, DHHS, FDA, FOIA, funding, government, HRSA, IOM, NIH, SMCI, spending, SSA
8 Comments
CDC Hilarity
Over the years, I have filed many FOIA requests, and I have learned that it can take a long time to get a response. But CDC takes the cake. In my experience, all the agencies meet the statutory requirement of … Continue reading
Posted in Advocacy
Tagged action, CDC, DHHS, FOIA, government, hilarious, IOM, politics, priorities, speaking out
21 Comments
CFSAC Public Comment, January 2017
I prepared comments for the January 13, 2017 CFS Advisory Committee meeting, but when my time arrived I decided to wing it. Below is my best reconstruction of what I said, a mixture of my prepared and spontaneous remarks. Start … Continue reading
Posted in Advocacy, Commentary
Tagged action, CDC, CFSAC, DHHS, drugs, education, FDA, government, healthcare, medical education, NIH, occupy, politics, priorities, recommendations, researchers, speaking out, stakeholders, suffering, testimony, treatment, truth
20 Comments
Comment by Terri Wilder, 1/12/17
Terri Wilder made these remarks at the January 12, 2017 meeting of the CFS Advisory Committee. I’m pleased to publish her complete comments, with her permission. Good Afternoon- My name is Terri Wilder and I’m a person living with ME. … Continue reading
Posted in Advocacy
Tagged accountability, action, CDC, CFSAC, DHHS, exercise, fierce, funding, GET, government, grants, living with, NIH, occupy, politics, priorities, recommendations, speaking out, spending, testimony, treatment
26 Comments
CFSAC Around the Corner
The next meeting of the CFS Advisory Committee will be held Thursday, January 12th, and Friday, January 13th. This is an in-person meeting, and will also be webcast. Note that the Thursday meeting runs from 12 pm to 5pm, while … Continue reading
Posted in Advocacy
Tagged accountability, action, CDC, CFSAC, DHHS, funding, government, NIH, occupy, politics, priorities, recommendations, speaking out, testimony
8 Comments
PACE: Grossly Exaggerated
On September 9, 2016, Queen Mary University of London released data from the PACE trial in compliance with a First Tier Tribunal decision on a Freedom of Information Request by ME patient Alem Matthees. The day before, the PACE authors … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, AHRQ, CBT, CDC, exercise, GET, living with, PACE, pacing, psychosocial, recommendations, researchers, speaking out, treatment
18 Comments
AHRQ Evidence Review Changes Its Conclusions
Mary Dimmock has led the way on this issue, and is co-author of this post. In response to requests by U.S. patient organizations and advocates, the U.S. Agency for Healthcare Research and Quality (AHRQ) has issued an Addendum to its … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, AHRQ, case definition, CBT, CDC, DHHS, evidence review, exercise, GET, government, living with, NIH, P2P, pacing, politics, psychosocial, recommendations, speaking out, systematic review, treatment
47 Comments
Scandal
Give me 90 minutes. Whoever you are, whatever your connection to or interest in ME/CFS, take 90 minutes to listen to this discussion with academic/journalist David Tuller, DrPH (Lecturer at the School of Public Health and Graduate School of Journalism … Continue reading
Posted in Advocacy, Commentary, Research
Tagged accountability, action, AHRQ, awareness, case definition, CBT, CDC, exercise, GET, occupy, open data, PACE, pacing, politics, post-exertional malaise, researchers, speaking out, treatment
19 Comments
Return on Investment: David Tuller
When journalist David Tuller asked for crowdfunding in 2017 to support his research and writing on ME for a year, he had already demonstrated his commitment to a rigorous examination of the many problems and issues associated with the PACE … Continue reading →