Category Archives: Uncategorized

Lightning Book Review: Crip Up The Kitchen

I’ve loved to cook since I was a kid. I wanted to grow up to throw fancy dinner parties like my aunt, complete with appetizers and an elaborate dessert. And I did give some pretty awesome dinner parties, with menus … Continue reading

Posted in Uncategorized | Tagged , , , , , , , | 6 Comments

Better Late Than Not At All

Last night, I was really struggling to come up with anything to be grateful for. I can’t say that no one in our family died this year. I can’t say my husband is getting closer to returning to work. I … Continue reading

Posted in Occupying, Uncategorized | Tagged , , , , , , , , , , , , , , | 16 Comments

Dr. Koroshetz Responds

I just received the following letter from Dr. Koroshetz: Below is a letter from Dr. Walter Koroshetz Dear members of the ME/CFS community, I appreciate the concern of many in the ME/CFS community as expressed in Ms. Spotila’s blog post … Continue reading

Posted in Uncategorized | 27 Comments

CFSAC Testimony, Jennie Spotila, August 18, 2015

Unfortunately, I am too sick to offer public comment by telephone for the August 18-19, 2015 meeting of the CFS Advisory Committee. I submitted these written comments for the record. Thank you to all of the advocates who are speaking … Continue reading

Posted in Uncategorized | Tagged , , , , , , , , , , , , , , , , , | 28 Comments