Subscribe to Blog via Email
Pages
-
Recent Posts
Recent Comments
- James David Chapman on Protesting Per Fink
- Nancy Blake on Protesting Per Fink
- James David Chapman on Protesting Per Fink
- Linda on Taking Care of Your Self
- Linda on Taking Care of Your Self
Archives
- October 2018
- September 2018
- August 2018
- July 2018
- June 2018
- May 2018
- April 2018
- March 2018
- February 2018
- January 2018
- December 2017
- November 2017
- October 2017
- September 2017
- August 2017
- July 2017
- June 2017
- May 2017
- April 2017
- March 2017
- February 2017
- January 2017
- December 2016
- November 2016
- October 2016
- September 2016
- August 2016
- July 2016
- June 2016
- May 2016
- April 2016
- March 2016
- February 2016
- January 2016
- December 2015
- November 2015
- October 2015
- August 2015
- July 2015
- June 2015
- May 2015
- April 2015
- March 2015
- February 2015
- January 2015
- December 2014
- November 2014
- October 2014
- September 2014
- August 2014
- July 2014
- June 2014
- May 2014
- April 2014
- March 2014
- February 2014
- January 2014
- December 2013
- November 2013
- October 2013
- September 2013
- August 2013
- July 2013
- June 2013
- May 2013
- April 2013
- March 2013
- February 2013
- January 2013
- December 2012
- November 2012
- October 2012
- September 2012
- August 2012
- July 2012
- June 2012
- May 2012
- April 2012
- March 2012
- February 2012
Meta
Tags
accountability action anaerobic biomarkers case definition CBT CDC CFIDS Association CFSAC coping CPET DHHS drugs exercise family FDA funding GET government grants heart rate monitor IOM living with Millions Missing NIH occupy orthostatic intolerance P2P pacing pain pathogenesis politics post-exertional malaise priorities psychosocial recommendations researchers RFA RFA Ticker speaking out spending stress suffering testimony treatment
Category Archives: Occupying
More Thoughts on Suicide
Last week, Johanna Haban provided some important resources and information for people with ME who are overwhelmed or are contemplating suicide. This topic is complicated and very important to discuss, so Johanna and I spoke further about issues related to … Continue reading →
Posted in Occupying
|
Tagged community, coping, crisis, death, dying, guest post, honesty, hope, living with, occupy, pain, psychosocial, resources, speaking out, stress, suffering, suicide, support
|
9 Comments
Crisis and Suicide
The list of people with ME who have taken their own lives is too long. Fortunately, there is help available for anyone in crisis, and their loved ones. There are many issues to discuss about suicide and end of life, … Continue reading →
Posted in Occupying
|
Tagged community, coping, crisis, death, dying, help, honesty, living with, occupy, pain, psychosocial, resources, speaking out, stress, suffering, suicide, support
|
17 Comments
Top
I am very fortunate in all of you, my readers. I was nominated this year for the Best In Show Blog Award from WEGO Health (for the third time!). Carol Head of Solve ME/CFS Initiative and Tom Kindlon were also … Continue reading →
Posted in Occupying
|
Tagged action, awards, living with, nominations, occupy, speaking out, stories
|
5 Comments
23 and ME
May the depths you have reached hold you still – John O’Donohue Twenty-three years ago today, I woke up with a sore throat. I went to work, and within a few hours I had a high fever and could barely … Continue reading →
Posted in Occupying
|
Tagged anniversary, balance, break, coping, done, family, health, living with, occupy, persistence, personal, resist, sick, sickaversary, speaking out, strength, stress, suffering, tired, triumph, truth, victory
|
43 Comments
My “Summer Vacation”
What I’ve done on my “summer vacation” has not been fun. I’ve had a rough couple of months. Non-ME health issues have gobbled up most of my capacity, and I’m still feeling the repercussions. I’m not ready to talk about … Continue reading →
Posted in Occupying
|
Tagged coping, diagnosis, doctorss, essentials, health care, help, living with, occupy, pacing, preventive, priorities, self-care, stress, suffering, support
|
42 Comments
Funding Unrest
Four years ago, I wrote that Jen Brea’s film, then titled Canary In A Coal Mine, could be a defining moment in ME advocacy. Today, we stand on the threshold of a watershed moment for our disease, and Jen is … Continue reading →
Posted in Advocacy, Occupying
|
Tagged action, activism, advocacy, film, fund raising, Kickstarter, Millions Missing, NIH, occupy, speaking out, suffering, unrest
|
11 Comments
Best In Show Blog
I am excited to announce that for the third time, Occupy ME has been nominated for the Best In Show Blog award in the WEGO Health Awards! Now we enter the part of the process where you can influence the … Continue reading →
Posted in Occupying
|
Tagged action, awards, living with, nominations, occupy, speaking out, WEGO
|
15 Comments
Guest Post: Sickaversary
My friend, Jenny R, wrote these profound words about her sickaversary. 10 years and 4 days ago today I got sick and never got better. I wrote this to commemorate it: I want to write something incredibly profound and moving … Continue reading →
Posted in Occupying
|
Tagged coping, grief, living with, loss, occupy, speaking out, stress, suffering
|
6 Comments
Book Review: Growing Gills
I usually focus my book reviews on titles that are directly related to ME, but I’m making an exception today because I want to tell you about Growing Gills by Jessica Abel. This book is about creativity, not disease, but … Continue reading →
Posted in Commentary, Occupying
|
Tagged action, book review, coping, creativity, disability, living with, pacing, time, writing
|
12 Comments
Unrest: Movie Review
Spoiler alert: This review discusses some specific scenes from Unrest. Edited to add: No, really! There are SPOILERS here! If you want to see and experience the film with a blank slate, then go see the film and come back … Continue reading →