But hey, NIH is “looking for funding” for ME/CFS initiatives. Imagine a multibillionaire – say, Bill Gates – patting his pockets and checking his wallet for money to help a beggar on the street. It would be hilarious if there were not real people suffering while NIH checks behind the cushions for loose change. For an agency with a $32 billion budget overall, and having just received $2 billion more than they requested from Congress, claiming they have to “find” the money is absurd.
In other news, FDA just announced it will provide $2 million for studies of the natural history of rare diseases. Unfortunately, none of this money can come our way as FDA is required by statute to define a rare disease as affecting less than 200,000 people in the United States.
It’s a sick joke, really. ME/CFS patients are too numerous for FDA to consider them “rare,” and yet NIH is “looking for money” in its vast budget to research a disease which costs our economy billions of dollars a year. Can someone let me know when the situation becomes rational and logical?
Meanwhile, here are your latest numbers:
- Total RFAs Issued by NIH: 149 (October 2015 to date)
- Total Dollars Committed to RFAs: $1,611,100,000 (October 2015 to date)
- Total RFAs for ME/CFS: ZERO (October 2015 to date)
|Week Beginning||RFAs Issued||Total Commitment||RFAs for ME/CFS|
If you want more background on the RFA Ticker, read the inaugural post.