There are a number of opportunities for ME/CFS advocacy right now – all of which you can do on your own from home! Here are the details:
CFS Advisory Committee Public Comment: The Federal Register notice for the August 18-19th meeting has been published.
- Registration to attend in person is different this time! You must download a form on the CFSAC website (although it’s not available yet) and email it to CFSACmtg@hhs.gov. Registration for attendance closes August 13th.
- Public comment registration is required to comment in person or by phone. Request a slot by emailing CFSACmtg@hhs.gov. Comments are limited to three minutes in length, and registration closes August 10th.
- Written public comment can be submitted, whether you have a speaking slot or not. Comments should be no longer than 5 single spaced pages using 12pt font, and should be in MS Word format. Email your comments to CFSACmtg@hhs.gov by August 13th for inclusion in the public record.
NIH Strategic Plan: Public comment is due August 16th. I‘ve posted details about the plan and my own comments.
Key States Targeted for NIH Funding Petition: MEAction is looking for advocates in twenty-two key states to participate in targeted advocacy with Congress. Even if you don’t live in one of those states, you can still sign the petition.
I expect more advocacy actions will be launched in the near future, so stay tuned.