Monthly Archives: July 2015

Deadlines and Opportunities

There are a number of opportunities for ME/CFS advocacy right now – all of which you can do on your own from home! Here are the details: CFS Advisory Committee Public Comment: The Federal Register notice for the August 18-19th … Continue reading

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A New Strategic Plan

The National Institutes of Health is creating its first strategic plan, at the request of Congress. The public now has an opportunity to comment, and this is an important opportunity to reinforce the need for ME/CFS research funding. Liz Willow … Continue reading

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The Return of CFSAC

Publicly, the CFS Advisory Committee has been MIA this year. There were some comings and goings, and general silence, but now there is finally movement to report. UPDATE July 28, 2015: The Federal Register notice for the meeting has been … Continue reading

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Brian Vastag to Dr. Francis Collins

Yesterday, an open letter from science writer Brian Vastag to Dr. Francis Collins (Director, NIH) flashed around the ME/CFS social media-sphere like lightning. Then it spread among Brian’s high profile colleagues, like Martin Enserink and Carl Zimmer. Brian’s letter is … Continue reading

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Talk Is Cheap

In today’s guest post, Denise Lopez-Majano makes the case that the time for talk is over and the time for action is now. For decades, stakeholders have advocated for funding commensurate with the severity of ME/CFS. The government’s response has … Continue reading

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Wheelchair – HELP!

I need a new wheelchair, and I need your help! I have used a manual chair for many years, relying on friends and family to push me around. But the chair gets caught in pavement cracks, has trouble going over … Continue reading

Posted in Occupying | Tagged , , , , , | 19 Comments