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Monthly Archives: March 2012
FITNET or Fairy Dust?
There has been much buzz in the CFS community over the latest CBT (cognitive behavioral therapy) study claiming astounding recovery rates in CFS. This time, the study is called FITNET, a test of internet-based CBT for adolescents with CFS in … Continue reading
Posted in Commentary, Research
Tagged CBT, GET, pacing, post-exertional malaise, psychosocial, treatment
5 Comments
App for That
Dr. Esther Crawley recently announced the availability of a new iPhone app for CFS patients: ActiveME. The app is designed to help patients monitor their activity levels with the goal of identifying “boom and bust” energy cycles. I decided to … Continue reading
The Holy Grail
Many CFS patients are holding their breath awaiting the results of the multiple lab XMRV study, nicknamed the Lipkin study after its coordinator Dr. Ian Lipkin of the Center for Infection and Immunity. I am not one of them. I … Continue reading
Posted in Commentary, Research
Tagged funding, government, Lipkin study, pathogen discovery, politics, XMRV
13 Comments
Disaster Voyeurism
I believe in bearing witness. In many ways, that’s what Occupy CFS is about. Everyone suffers in this life, but bearing witness to another person’s suffering is a sacred act. To bear witness is to absorb the sufferer’s story, to … Continue reading →