Monthly Archives: March 2012

Disaster Voyeurism

Posted on March 16, 2012 by Jennie Spotila

I believe in bearing witness. In many ways, that’s what Occupy CFS is about. Everyone suffers in this life, but bearing witness to another person’s suffering is a sacred act. To bear witness is to absorb the sufferer’s story, to … Continue reading →

Posted in Commentary | Tagged , , , , , , | 1 Comment

FITNET or Fairy Dust?

Posted on March 12, 2012 by Jennie Spotila

There has been much buzz in the CFS community over the latest CBT (cognitive behavioral therapy) study claiming astounding recovery rates in CFS. This time, the study is called FITNET, a test of internet-based CBT for adolescents with CFS in … Continue reading →

Posted in Commentary, Research | Tagged , , , , , | 5 Comments

Easy (Chick)Peasey

Posted on March 8, 2012 by Jennie Spotila

Once upon a time, there lived a young woman who was a foodie. She loved spending hours over a meal at the dearly departed Striped Bass. She also loved executing multi-course meals that used every pot and pan in the … Continue reading →

Posted in Occupying | Tagged , , , , , , | 4 Comments

App for That

Posted on March 6, 2012 by Jennie Spotila

Dr. Esther Crawley recently announced the availability of a new iPhone app for CFS patients: ActiveME. The app is designed to help patients monitor their activity levels with the goal of identifying “boom and bust” energy cycles. I decided to … Continue reading →

Posted in Commentary | Tagged , , | 9 Comments

The Holy Grail

Posted on March 1, 2012 by Jennie Spotila

Many CFS patients are holding their breath awaiting the results of the multiple lab XMRV study, nicknamed the Lipkin study after its coordinator Dr. Ian Lipkin of the Center for Infection and Immunity. I am not one of them.  I … Continue reading →

Posted in Commentary, Research | Tagged , , , , , | 13 Comments